david cameron spoke for the first time of the ` nightmare ' of learning that their first child had a rare disorder which left him in a wheelchair , needing to be fed through a tube and suffering from cerebral palsy and severe epileptic fits .
he died aged six in 2009 from ohtahara syndrome , a rare brain disorder which left him in a wheelchair , needing to be fed through a tube and suffering from cerebral palsy and severe epileptic fits .